ONC revealed that using the FHIR to leverage data shows promise for the acquisition of clinical registry data, reducing processing times and improving submission delays.
– Only about 46 percent of non-federal acute care hospitals in the United States participate in clinical data registries due to the daunting task of data collection. However, a solution may be in sight.
A project funded by ONC’s Leading Edge Acceleration Projects (LEAP) leveraged Fast Healthcare Interoperability Resources (FHIR) to simplify the historically complicated task of populating clinical registries and use the data to improve care decisions.
Clinical data registries are vital repositories of patient health information and treatment details. These registries focus on specific conditions, enabling healthcare providers to analyze treatment effectiveness across diverse patient profiles. By leveraging these registries, hospitals and private practices can measure and enhance the quality of care provided to patients.
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The project also explored the potential of using FHIR to extract and submit registry data effortlessly. During the January 2023 HL7 FHIR Connectathon, CRISP successfully demonstrated data extraction from EHRs and submission to the CathPCI Registry using a proof-of-concept application.
James E. Tcheng, a cardiologist at Duke University School of Medicine and an informatics advisor to ACC, led efforts to normalize the National Cardiovascular Data Registry (NCDR) to universal standards. Tcheng reported that more than 40 percent of clinical registry data could be extracted using FHIR, marking significant progress. However, complete extraction has not yet been achieved.
This innovative endeavor holds tremendous potential for advancing patient care and research in cardiovascular health, Tcheng said
“Using FHIR to mitigate the pain points of registry completion can result in reduced processing times, less intervention for registry documentation, reduced submission delays, and improved data quality,” Ayala said. “As a result, the time required for clinicians to use the information to make clinical decisions and support patient care can be reduced.”
CRISP and ACC have also created the Protocols for Clinical Registry Extraction and Data Submission (CREDS) FHIR Implementation Guide (IG). This groundbreaking guide offers a scalable solution for hospitals, health information exchanges (HIEs), and other contributing organizations involved in the National Cardiovascular Data Registry (NCDR) and other registries. Set to be published in the fall of 2023, this IG aims to streamline data extraction and submission processes, revolutionizing the way clinical data is shared and utilized.